Eight years ago, my granddaughter Emma was diagnosed with Cystic Fibrosis just 72 hours after she was born. For those of you unfamiliar with the genetic disease, CF causes a thick mucus to build in the lungs and pancreas. It makes breathing sometimes difficult, and growth is typically slower as the digestive system is challenged. 'Nuf said about CF.
Two years ago, I was at work when I got another terrifying phone call. My second grandchild, Lucas, was diagnosed with CF. I am now TWO for TWO :)
These children are such a blessing. Their disease is so rare. I often wondered if when my sons Eric and Duane chose their spouses if they perhaps ran an ad on Match.com reading "SWF, must have genetic mutation delF508 for Cystic Fibrosis." And to have only two grandchildren, born to two different sons (with different wives, ha!), and having this life-shortening disease was somewhat comparable to standing in an open field on a sunny day, and being struck by lightening... TWICE.
Honestly, this post is difficult to write. I know how many are struggling in this economy to make ends meet. People are without jobs, and the cost of everything climbs every day. If you are reading this post and can simply spare the change in your pocket today, or can donate the price of your next cup of coffee or soda, you WILL change lives. If you cannot spare a dollar, I do understand.
CF --- for the very first time ever, now has a medication on the horizon that will actually treat the underlying cause of the disease, not simply help with the symptoms. Life expectancy for these kids is just under 40 years old. But with your coffee change, they have a fighting chance for more years. Quality years.
Please click the link to see the fundraising page, and take a quick peek at the slideshow so you will know Emma and Lucas personally. I love you all, and am blessed that you spent a few moments with me. Thank you. God bless.